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When Scott Painter first opened his eyes more than three months after a brain injury and multiple strokes, he couldn’t talk or move.
When she finished putting the needles in him, I could see that he turned white and he was going to fall off the bench. I grabbed hold of him. I put him on the ground and then everything went wrong. He stopped breathing and then they called us into the office and told us the worst news.
My name is Scott Painter. I'm Gary. I'm Scott's father. And I'm Jan, Scott's mum. Scotty came home from school on the Monday afternoon, got on the tractor and after he got off, he had a sore neck. After a couple of days, I went to the GP. So, he automatically just assumed that I've strained a muscle. So, he gave me some anti-inflammatory cream and some tablets. But when I got home after the appointment, the pain was getting worse and worse and worse. So, my mum had said, "Okay, I'm going to book you an appointment. And you can go to acupuncturist. When they put acupuncture needles in, it draws all the blood to the area. So, it takes all the good blood there and all the bad stuff away. That's what speeds up your healing process. But because the brain tumour was there, and we didn't know there was a brain tumour, it weakened all the surrounding capillaries and arteries in my my brain. So, all the blood went to that weakened area and just exploded. But as your skull is only so big, the pressure that was building up from the blood started shutting down parts of my brain. And that's why I went into a coma. Everything, wasn't it? Everything went wrong. Just everything went wrong. Turns out that after the MRI was taken, they found a brain tumour on the brain stem. And then that night, I don't know why, I said to the nurse, called the nurse over and I said, "Can you have a look at Scotty?" She picked up his arm and it was just like all jelly. They hit the buzzer. Code blue. Code blue. And then they all came in and then they took Gary and I out of the ward and then we heard him say he's not breathing. They said he had to go to theatre. Yeah. They took him down for a 4 and 1/2 hour operation. One lung collapsed. Two lungs collapsed. Urine infection. Golden staph. Three strokes. Well, it's seemed like a nightmare. Yeah. Like it really didn't happen. I can remember sitting there and he's on life support and pinching myself, is this really happening? You know, am I dreaming this? We were really happy that they got the tumour and everything. It was a size of a 50 cent piece. And you had the three strokes because of where the tumour was. So your brain stem controls all like your autonomic functions like your ability to breathe and your heart rate and your your blood pressure as well. So you can imagine like those little things that we just take for granted getting taken away. After I got out of my coma, I went through a little bit of rehab. So the ability to sit up and once I could sit up, I was put into a wheelchair and I was in a wheelchair for 3 to 4 months. And from there on, I learned how to stand for about 20 seconds. And then after that my balance, yeah, just having to learn how to do everything. So it's pretty much after my injury, like going from childhood again. So as you were born, everything that we learn in those stages of growing up, I had to learn again. One day just waking up being reliant on absolutely everything. It was scary. You feel alone, you feel scared, you don't know what's happening. Thank god that I had a really good support network. During my recovery process, my mother and my family, but mainly my mum was my biggest advocate because with the strokes that my voice box didn't work, so therefore I couldn't talk. When he was in hospital, if anyone said anything to him, he'd go. The rude finger. So, and to this day, he's still going to break down his finger. My mum was my voice. She used to advocate all the time for my best wellbeing. She did everything for me. It was all hard. Yeah. We used to go over to the hospital and everything. I'd hang on to his hand. Yeah. We nearly lost him four times. And then it took him 7 years to come good. So after being in hospital for just nearly a year, I wanted to use my brain 'cause I couldn't use my body 'cause my brain injury happened at when I was 17 years old. So year 11, I didn't finish my high school certificate. So therefore, I was under the age of 21, couldn't get into university 'cause I didn't finish my HSC. So we searched the internet back then and found Southern Cross University offered a PSP program. So preparing for success, which would allow me to get into university because I wasn't a mature age student and I didn't complete my HSC. I didn't have that little bit of paper to get me into all the other universities. But Southern Cross allowed me to get in through this preparing for success program. It just it shaped me to be to get ready for uni and then he finished that and started uni and yeah and he just loved it, man. But he he worked hard. He worked hard, you know, like always studied. And so learning all those skills was what pushed me into wanting to study my bachelor's of exercise science and nutrition followed by my masters after that. Scott Daley Painter.
And then all of a sudden he just decided bang that was it and he just worked his butt off on that. Oh yeah. I couldn't write and I could only just talk but I couldn't talk loud. So couldn't ask questions or stuff with the lectures and that. So he gave me a dictaphone. So the lecturer would start the dictaphone for me and record I would take that home, download the lecture and put it onto an iPod and during my rehab. So while I was doing my rehab, learning how to walk again and talking and everything, I was listening to lectures. I was studying at the same time as doing my rehab. That's all he did, wasn't it Gary? Was exercise and uni. After a brain injury, your perspective on life changes a lot. We take so many things for granted. But it's not until these things are taken away that we realise just how important they are. Like the ability for us to get up in the morning. We see that as a a chore that we got to get up, it's cold, we've got to go to work. Someone with a brain injury sees things on like the other side of the coin. They would love to get out of bed by themselves. They would love to have a job. So they see the good in everything where there's a lot of people out there in the world that don't see the good in everything. His determination, whatever he wanted to do, he did it and he did it good. I had a lot of health professionals tell me that like you will never be able to walk again, eat again. I was told a lot of things I'll never be able to do again because my injury was the same as someone else's injury. They just saw me as them. I just like to prove those people wrong. So that's what made me push through everything and every single day try as hard as I could. So being told I would never be able to eat, talk, walk, uh what that did to me was I just tend to prove people wrong. And yeah, it's just can't can't keep me down. And that's why I work now in neurological rehab to give back to the people that are going through the same journey as what I once did. Oh, they just love him. And he love he loves it. He said to me, he said, "Mum, I've never ever woken up and thought, 'Oh, I've got to go to work.'" He just loves it. He's a hard worker. He gets results. Blokes come in in wheelchairs and everything. He's got him up and, you know, 100%. He got one guy up to walk for his wedding. Yeah. Yep. Up the aisle. And it's funny, he's telling me one day that he was doing exercise with someone and this guy had had a stroke. Anyway, um and Scott said, "Oh, we'll do this da da da," you know, and he couldn't do it. This guy couldn't do it. And then Scott said, "Oh, we'll try it this way." This guy said, "I've had a stroke." And Scott said, "Well, I've had three." Yeah. He um realised what it's like to be on the other side. And I think that's why he works so hard with his recovery and also with with his patients now. But having that dual perspective of being a patient and now being a practitioner. So knowing what clients are going through, you don't know exactly what they're going through because everyone's different. But having that bit of knowledge about what they're more than likely going through, it makes me like a rare practitioner. And that's why I work now in neurological rehab to give back to the people that are going through the same journey as what I once did. Yeah, I love it. But he's really happy now. He's got a nice home and he's got the best job, you know, loves his job and he's got a lovely wife now. Yeah. Yeah. And a little bub. If it wasn't through Southern Cross University and that prepare me to be who I am today, I wouldn't be doing what I love. My name is Scott Painter. I'm the head clinical exercise physiologist at Headway ABI Australia on the Gold Coast. I run what's called the WIN Centre which is a neurological rehabilitation centre. I've been working here for the past 8 years. I studied my bachelors degree in exercise science and nutrition followed by my masters degree in clinical exercise physiology at Southern Cross University.
Had he really gone from driving a tractor on his family’s farm, to a coma on life support in ICU?
“I ended up spending more than a year in hospital, it was brutal,” he said.
“Some of the staff there were great, but I did have some health professionals say to me: ‘I’ve seen heaps of people like you – you’ll never eat again, or walk again’, and that’s not exactly something a 17-year-old wants to hear when they’re so early in life.
“I was paralysed on the left side, and I had to learn how to do everything again – it’s like having to go through childhood again. I had gone from being very physically fit to relying on everybody for help with everything. My support network is what pushed me through, my parents and friends, the physios, occupational therapists and speech therapists, who worked together to help me get the best outcome. As for the others who thought I would never get better – I had a fire in me to prove them wrong.”
Now in his thirties, not only did Scott make a full recovery, he works as the Practice Manager and Head Accredited Exercise Physiologist at Headway ABI Australia on the Gold Coast. He specialises in Neurological Physical Rehabilitation, helping others overcome the devastating effects of acquired brain injuries.
Scott’s injury and near-death experience happened when he was in Year 11. This was the result of a ruptured brain tumour (Arterious Venous Malformation) wrapped around his cerebella and brain stem followed by three strokes – forcing him to drop out of high school to focus on rehabilitation.
But it was his own rehab journey that sparked a deep curiosity in him to study Exercise Physiology, researching degree options at Southern Cross University.
“That first year after my injury I couldn’t really do anything physically, but my cognitive ability was still there, as I was learning to sit up, then use a wheelchair, then walk again. My mum, who was my biggest support, encouraged me to start studying, so when I was 20, I enrolled into Southern Cross University’s Preparing for Success Program – a bridging course so that I could get into my degree of choice. Mum would drive me from the family farm to every University class.
“Southern Cross was incredible in the support they provided. Their disability support is what helped get me through. The lecturers were so accommodating. This was back before lectures were recorded. I would get to class early and leave late because I still didn’t have a proper sense of balance, so I wanted to avoid having lots of students rushing around me. This is why brain injuries are called the invisible disability because I looked just like everyone else, but my balance was impaired. I couldn’t write and couldn’t speak very well as my voice box was paralysed, so I would record my lectures on a dictaphone, and when I was doing my recovery – my therapies and rehab at home – I would listen to the lectures, so I was studying and doing my recovery at the same time.”
“"That first year after my injury I couldn’t really do anything physically, but my cognitive ability was still there, as I was learning to sit up, then use a wheelchair, then walk again. My mum, who was my biggest support, encouraged me to start studying... The support I received from Southern Cross was incredible, second-to-none. I don't think I could've gone anywhere else."”
Scott received good grades and as his recovery continued, he went on to study his Bachelor degree in exercise science and nutrition then a Master of Clinical Exercise Physiology at Southern Cross’ Lismore campus (now offered as a combined four-year Bachelor of Clinical Exercise Physiology), completing his placements at the University’s health clinic.
“The support I received from Southern Cross was incredible, second-to-none. I don't think I could've gone anywhere else.
“One of my lecturers, Suzanne Broadbent was like the guru of neurological rehab, and she really took me under her wing. She helped me specialise in that area and assisted me in the health clinic in seeing clients who had experienced brain injuries.
“I graduated and moved down to Port Macquarie and worked down there for a year as an Accredited Exercise Physiologist, before I began my role at Headway on the Gold Coast, where I’ve been providing neurological rehabilitation to brain injury survivors for almost a decade now.”
Scott says the clients he works with are the most resilient he knows – people who have had strokes, traumatic brain injuries, acquired brain injuries, cerebral palsy, multiple sclerosis, or any type of neurological injury.
He also mentors Clinical Exercise Physiology students currently studying through Southern Cross University.
“After someone suffers a brain injury, my job is to help provide the most effective, compassionate, and tailored approach to help individuals rebuild their strength, independence, and confidence.
“There are so many things people take for granted in life, or even complain about, like having to wake up and get out of bed to go to work, or that our car has no fuel, but so many of my clients are the flip side of that. They’d love to have a job and get out of bed themselves and drive a car and be able to fill it with petrol themselves – yet where many people see the negatives, my clients so often see the positives and see so many things as an opportunity despite the hardships they’ve endured.
“My past medical history means I have that dual perspective of being a patient and now being a practitioner, so having that knowledge of what it is they might be going through, it does makes me quite a rare practitioner. Demonstrating genuine care is essential as patients are more receptive to your knowledge when they feel personally supported.”
Scott recently released a book outlining not just his physical recovery, but the emotional side of rehabilitation titled, Tragedy To Triumph: How I got back to 100% functionality after having three strokes.
“It’s often the emotional side of things that is not recognised in rehab, so my book really delves into that. This book isn’t just for those who’ve gone through a brain injury and their friends and family, but it’s also for health professionals to really help them understand the emotions involved. My book has gained a lot of positive attention not only in Australia but overseas, and I'm happy I can help so many people away from my daily face-to-face clinical rehab sessions.
“After a brain injury or any neurological injury, a lot of hospital staff will say that you make all your gains in the first six months – but that’s not actually true. While you do make a lot of your gains in the first six months, you can get better years and years onwards. Neuroplasticity is the brain's way of relearning how to do certain things again and creating those new pathways which can happen for years afterwards. You do have to push yourself every single day to keep moving towards where you want to be, even though there’s so many failures on the way, you do have to keep trying new things.
“I’ve had really positive feedback from health professionals who’ve read the book who have shifted their perspective, and also from people who’ve gone through brain injuries who may have been told in the hospital that they won’t get better after six months. It’s really important to challenge that thinking, because improvement is possible and a lot of people just don’t know how powerful they really are.
“Your brain can adapt after you leave hospital. I'm living proof of that. I was still getting better for 11 to 12 years after my injury.
“Often these people who have suffered a brain injury are scared, afraid, and sometimes alone. For so many people the most pressing issue is their balance, so one of the major things we do is getting them to walk and move properly again.
“In our neurological clinic on the Gold Coast we have two very important pieces of rehabilitation equipment called ICARE machines from Canada, that are body weight supported using a harness. It helps people get upright again after they’ve been in bed or a chair for a long time, into a standing vertical position where their breathing's better and their neurological system works a lot better, without the risk of falling while exercising.
“I not only help people start moving again, but I encourage them to pursue their passion – whether that’s going to university, getting a job, doing what they love and having a good life.
“It took a long time, and a lot of grit and perseverance, and a team of professional health staff working together to help me get the best outcome, but I am so thankful I can do anything now. I go camping, go to the beach, go fishing and play golf – the only thing I don't do now is play contact sports, but that's just a precaution on my part. I live a very full life.
“Just because you’ve had this major life changing episode, doesn’t mean that your life is over.”